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Useful links

Please note that Ataxia UK is not responsible for and does not endorse the contents of external sites 

 

Assist-UK is a resource for people searching for disability advice and disability equipment through a network of disabled living centres.

www.assist-uk.org

DIAL UK is a national organisation for a network of 140 local disability information and advice services. www.dialuk.info

RADAR is a national organisation run by disabled people, offering a bookshop, mailing list and email chat service, links to other disability sites, and for disabled toilets nationwide.

www.radar.org.uk

Livability offers services and resources for disabled people.

www.livability.org.uk

Contact a Family is a UK charity for families with disabled children, offering information on specific conditions and rare disorders.

www.cafamily.org.uk

Shape Arts helps disabled people to access arts and theatre.

www.shapearts.org.uk

After16 provides young disabled people with information about a range of issues which may concern them, including relationships, education, work and the law.

www.after16.org.uk

Directgov www.direct.gov.uk

Carers UK www.carersuk.org

British Association of Counselling www.bacp.co.uk

UK Counselling directory www.counselling-directory.org.uk

www.cpdirectory.com  

UK & Ireland Directory of Counselling and Psychotherapy

Genetic Interest Group www.gig.org.uk

Neurological Alliance www.neural.org.uk

Disability Alliance www.disabilityalliance.org

Disabled Living Foundation www.dlf.org.uk

Disability Now www.disabilitynow.org.uk

Equality and Human Rights Commission www.equalityhumanrights.com/

BBC Disability section www.bbc.co.uk/ouch

Nystagmus Net   www.nystagmusnet.org/

Make-A-Wish Foundation® UK www.make-a-wish.org.uk/

make a wish"Make-A-Wish Foundation® UK has a very simple objective – to grant magical wishes to children and young people fighting life-threatening illnesses. The charity was founded in the UK in 1986 and since then has granted over 5,500 wishes.

 

With over 20,000 children in the UK living with life-threatening conditions at any one time, our work is never ending.  Our aim is to ensure that every one of these children is able to experience the magic and joy of a Make-A-Wish wish.

 

We receive no government funding or lottery grants, relying on the generous donations of the public and that’s why, for our charity, every donation really counts."

Overseas organisations

International Network of Ataxia Friends (Internaf)

www.internaf.org

GoFAR

www.fa-petition.org/main.html

Living with Ataxia

www.livingwithataxia.org

Ataxia-Telangiectasia Society

www.atsociety.org.uk

Australia Friedreich Ataxia Research Association

www.fara.org.au

Spinocerebellar Ataxia Resources and Support

http://scars.comfypage.com

Austria Deutsche Heredo-Ataxie Gesellschaft e.V

www.ataxie.de

Austria, Germany and Switzerland Die Internetplattform über die Friedreich´sche Ataxie

www.fataxie.net

Association Belge de l'Ataxie de Friedreich

www.ataxie.be

Association Canadienne des Ataxies Familiales

www.lacaf.org

www.alyshia.com/opca

Cuba Centre for the Research and Rehabilitation of the Hereditary Ataxias

www.ataxiacubana.sld.cu/ataxia_en_index.htm

Euro-Ataxia

www.euro-ataxia.org

Suomen MS-Liitto - Finlands MS-Förbund

www.ms-liitto.fi

Association Franciase de l'Ataxie de Friedreich

www.ataxie.com

Connaître les Syndromes Cérébelleux

www.csc.asso.fr

Seek a Miracle Ataxia Group

www.samataxiagroup.org

Friedreich's Ataxia Society of Ireland

www.ataxia.ie

Associazione Italiana per la lotta alle Sindromi Atassiche

www.atassia.it

Atassia di Friedreich

www.atassiadifriedreich.it

Vereniging Spierziekten Nederland

www.vsn.nl

ADCA-Vereniging Nederland

www.ataxie.nl

Spain Federación de Ataxias de España (FEDAES)

www.cienciaysalud.info/er/ataxias

Episodic ataxia site

www.episodicataxia.org

Sweden Svenska Ataxiforeningen

www.svenskaataxiforeningen.se

Neurologiskt Handikappades Riksförbund

www.nhr.se

Switzerland Association suisse de l'Ataxie de Friedreich

www.achaf.org

Schweizerische Gesellschaft für Muskelkranke

www.muskelkrank.ch

US A-T Children's Project

www.atcp.org

Friedreich’s Ataxia Research Alliance (FARA)

www.faresearchalliance.org

Friedreich’s Ataxia Parents Group (FAPG)

www.fortnet.org/fapg

National Ataxia Foundation (NAF)

www.ataxia.org