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Taking part in research

There are sometimes opportunities to take part in research projects. We are very grateful to all volunteers as some projects cannot be completed without the help of volunteers.

  For people with ataxia of unknown cause

Genetic testing in the ataxias

Testing for SCA11

Testing for SCA14

For people with Friedreich's ataxia

Research trial for speech perception in Friedreich’s ataxia – recruiting now

  Natural history study in Friedreich's ataxia (EFACTS)

For people with all types of ataxia

Movement difficulties in people with ataxia

Physiotherapy Research

Understanding movement problems of ataxic gait

Developing a patient-centred outcome measure for everyday tasks for people with ataxia

  Healthcare research

Review of epidemiology and service use in rare long term neurological conditions (RESULT study)

Young people's experiences of trials (University of Oxford)