"I was diagnosed at 13 with Friedreich's ataxia and immediately thought 'my life is over!' As I grew up I wished to be normal, finally aged 18 I am coming to terms with having FA ... I wish I had used the help available earlier, because now I am doing my A levels and everyone is so proud, my life is definitely not over! I'm as loud and outgoing as ever." Holly, 18
I'm new
How we can help
Ataxia UK works in two main ways: we fund research into finding treatments and a cure for ataxia, and we support people through our range of services. This section is divided into two main sections. Services we offer include:
- Helpline and Advocacy Service
- A range of free information resources and publications, including a quarterly magazine free to Friends (members)
- Regular events round the country
- Support through local groups and branches
- A range of grants to help with extra costs from having ataxia
We also work to improve treatment and care for people affected by ataxia.
