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Publications related to Health

 

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Alternative therapies  
Many people with long-term conditions are interested in alternative therapies. While there is no research proving that a particular therapy is effective for people with ataxia, anecdotal evidence suggests that some people find alternative therapies helpful for easing symptoms or for relaxation.  download
Medicine Development and Clinical Trials  
This document explains the process of medicines development and clinical trials  download
Brain & organ donation  
Deciding to leave your brain to medical research after your death can help scientists learn more about neurological conditions and help other people after you are gone.  download
Pain in ataxia
 
This document explains more about causes and management of pain whilst pain is not conventionally directly linked with ataxia, it can still a real problem for many people.
 download
Pregnancy in Friedreich's ataxia  
Pregnancy and Friedreich’s ataxia: Leaflet produced by Ataxia UK and the Friedreich’s Ataxia Research Alliance  download
Prescription Charges  
If you are taking regular medication and paying for your prescriptions, you may eligible for discounts which can make a big difference to your finances.
 download
Named Patient Medication  
Occasionally a medicine can be prescribed that is unlicensed. eg. when there is a special need for a medicine and there is no existing alternative download
Sight Problems
 
Some people with ataxia experience problems with vision. Ataxia UK’s Research Projects Manager Dr Julie Greenfield reported on a conference on neurological sight problems at the Glaxo Neurological Centre in Liverpool.  download
Swallowing and speech  
People with ataxia often have difficulties with swallowing and speech. This leaflet explains the reasons, and suggests how some problems may be alleviated.  download
Touch therapy    
 
A report on the results of the Training & support programme at Coventry University  download
Genetics and ataxia  
Some types of cerebellar ataxia are inherited and some are not. This leaflet has been written to provide information
on the inherited ataxias. If after reading this leaflet you have any questions or concerns, please contact us at the
Ataxia UK office.
BMJ paper on the ataxias  
Ataxia on BMJ Oct 2005
Drs' Q & A 2008-2010  
Download the compliation of the Doctors' Question and Answers from the last three consequtive years
Neurologist list  
Download a list of neurologists with an interest in ataxia download