Ataxia Awareness Day
25 September is International Ataxia Awareness Day
International Ataxia Awareness Day 2009
Ataxia Awareness Day is held on 25 September every year. This year we are asking more people than ever to get involved and help spread the word that ataxia exists.
Recent research commissioned by Ataxia UK showed that just 7% of people know what ataxia is, even though over 10,000 people in the UK have the condition. Ataxia Awareness Day is a chance to change this and tell the world that we are working hard to support people and find treatments and a possible cure for ataxia.
This year we’re asking all our Friends to do something to mark Ataxia Awareness Day, however small.
Click here to download some easy ideas on how to get involved and raise awareness.
Download our Awareness Day flyer here.
Take part in our media campaign
Ever wished that more people knew what ‘ataxia’ meant when you talked about it? One way to change this is by being a media volunteer and telling your story in the press, radio, or TV. This year we’ll be working hard to get coverage about ataxia in the national and regional press and we need your help. We really need lots more case studies in order to get ataxia featured in the media, so please call us today if you’ve got an interesting story to tell. We’d love to hear from you if you have an unusual diagnosis story, if you’ve achieved something amazing with ataxia, if you’re planning a brilliant or wacky fundraising event locally, or just want to tell your own story of living with ataxia. We are especially in need of stories about children and young people but we’d love to hear from everyone.
To find out more and ask any questions you may have, contact Claire at the office for a chat on 020 7582 1444 or email cmcgowan@ataxia.org.uk
Click here for our Top Tips on getting your story in the media.
Find us on Facebook -why not join our Ataxia UK group on Facebook? |
Overseas organisations
If you represent an ataxia organisation outside the UK, we would love to hear what you are planning and add your details to our list. Please drop us a line at cmcgowan@ataxia.org.uk
Register today!
We hope the resources on this page inspire you to hold your own Wheely Wobbly Walk or other event for Ataxia Awareness day. Please get in touch today and let us know what you are planning: we'd love to hear about it. |
Ataxia UK, Lincoln House, Kennington Park1-3 Brixton Road London SW9 6DE, United Kingdom
© Ataxia UK 2005 Registered Charity Number 1102391
Website by fat beehive
